A Message from Our Family

From the Freifeld and Kotecki families:

In October 2011, Mark Freifeld, husband, father, grandfather, and father-in-law, was diagnosed with Multiple System Atrophy (MSA). MSA is a rare, progressively disabling, degenerative neurological condition that affects movement, blood pressure, and other body functions. As a result of the effects of MSA, Mark retired from his executive search practice and has now turned his focus to battling this disease.

Read more after the photo…

At David's graduation from UNC-Chapel Hill, May 2013.From left: David, Jennifer, Jeremy, me, James, Emily and Julia.

At David’s graduation from UNC-Chapel Hill, May 2013.

At this time, there is no cure but there is research taking place at various medical institutions around the world. Our goal is to support Mark, raise awareness about Multiple System Atrophy, and raise funds much needed for research. Mark is a patient at the Mayo Clinic in Rochester,Minnesota, one of the leading research institutions for MSA. Keeping us in the hope-zone is MSA research at Mayo.

Like other rare diseases, one of the main obstacles to a cure is the financing of research. The main source of funding for rare diseases is not from pharmaceutical companies but rather from private donations. Thus, we need your help.

Our family has an ongoing fundraising effort to raise money for cutting edge research occurring at the Mayo Clinic. The best way to help Mark and others suffering from MSA is to give directly to the Mayo Clinic and designate the funds for MSA research. All it takes is a few quick steps.

Donate by credit card

  1. Click here to donate
  2. IMPORTANT: On the ‘Make Donation’ drop down menu, select ‘Other – please specify below.’ Type in MSA Research.
  3. Click ‘Tribute Information.’ Then click ‘In honor of’ and type in Mark Freifeld
Donate by check :
    1. Make the check out to Mayo Clinic and specify for: MSA Research Honoring Mark Freifeld
    2. Send the check to:

Mayo Clinic
Department of Development
200 First Street SW
Rochester, MN 55905

TOTAL AMOUNT RAISED (amount will be updated every couple weeks): $35,683.00

Check back at this site to see the progress we’ve made!

Thank you for your support!
Freifeld/Kotecki Family


8 Comments on “A Message from Our Family”

  1. Lois Palumbo says:

    Donated and shared on Facebook. (Proud to be the first to donate.) Couldn’t send a tribute letter because I didn’t have an address. Please note that I enjoyed working with Mark and I wish the very best to him and the family.

  2. Lavern Crites says:

    I think what you are doing is great. My husband is a Baptist Preacher and had to resign his church the end of March due to his voice becoming weaker because he too has MSA. We would love to help but he has applied for disability and still has not been approved. We have no income right now and are living by faith. God is good ALL the time and he is taking care of us. I will pray for progress in the research at the Mayo Clinic. p.s. You have a lovely looking family:)

  3. broadthinking says:

    Mark, I’m inspired by your resolve. But then again, I remember the first time we spoke (years ago) when you were looking for candidates for some job or another. You struck me then as surprisingly normal, intelligent, thoughtful, good-humored guy – a rarity in the executive recruiting world. So sorry to read this news. As a cancer survivor (4 years out) I continue to worry about the aftermath of all that chemo and crap. Have had several friends who have recently been visited by some new disease thanks to their prior “treatment.” It’s cruel, but it’s life. I love how you haven’t given up. Gives me hope. Have tweeted your campaign and blasted the trumpet on LinkedIn. There’s no doubt that you will be successful in raising awareness. Mayo is lucky to have you. Best to you and your family. And I will continue to send healing juju your way from Austin. — Ashley

  4. Jeff Sporkin says:

    Good luck with your fight. As Ashley says above, I will send healing juju your way as well.
    Jeff

  5. Nancy Melton says:

    Hi Mark. Best of luck to you all. I look forward to reading the story of your journey.

  6. Roman Frigge says:

    Keep up the fight as I have MSA as well. I am disabled now and quit work over a year ago,because of my voice.
    You have a wonderful looking family.
    God bless you all,
    Roman Frigge

  7. Charlie Gale says:

    Mark:

    Every struggle carries with it seeds of opportunity. Thank you for setting up this website. It allows all of us who love you and your family an opportunity to join forces to find answers.

    Caren, Charlie, Rebecca and Jonathan

  8. bob Miglarese says:

    Mark,

    Its been some time since we talked. I was saddened to hear about your MSA battle. I wish you all the best in your clinical trial and your fight. Keep the faith.

    I saw that you are writing a book care from the patient perspective. I wonder if you have read “How Doctors Think” by Jerome Groopman or “Overtreated” by Shannon Brownlee. They are two of the best books offering perspective on treatment and the experience of receiving care from the physican and patient perspectives. I read them a few years ago after my wife almost died as a result of complications from poor treatment at Duke. I wish I knew at the time what I later learned about actively managing your own (or loved one’s) care from reading the books.

    Glad to make a donation on your behalf.
    Bob Miglarese


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