According to the National Organization for Rare Disorders, “any disease affecting fewer than 200,000 Americans is considered rare. There are nearly 7,000 such diseases affecting nearly 30 million Americans.” It is estimated that Multiple Systems Atrophy affects 15,000 Americans another are probably another 35,000 who are misdiagnosed because most doctors are unfamiliar with this disease1. Currently, there is no cure and no effective treatment. The disease is random and typically strikes both men and women in their mid-fifties. Below is a list of resources to help educate yourself about MSA, research, online communities and advocacy.
- Mayo Clinic
- Vanderbilt Autonomic Dysfunction Center
- Multiple System Atrophy Trust
- National Organization for Rare Disorders
- MSA Awareness